Tag Archives: stress

A Lesson in Priorities


by Lillian Csernica on June 6, 2016

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Ever had one of those days when no matter how hard you try, life just keeps getting between you and what you’re trying to accomplish?

Today fought me from the minute I dragged myself out of bed.  Phone calls, interruptions, distractions, failures to communicate.  This resulted in me being late picking up John at school, something I try my very best to avoid.

When I was a little kid, my mother had occasion to leave me with babysitters or at day care centers.  Either Mom wasn’t good at time management, or life got in her way too, because she was often quite late picking me up.  When you’re six, this causes the kind of anxiety that scorches your little tiny soul for life.  I don’t EVER want John to feel that.

Once I picked up John, he alerted me to the sudden need for two dozen cupcakes.  P.E. class will be having a BBQ to celebrate the end of school.  The cupcakes are John’s contribution to the feast.  OK.  Since I had to drive to the store with the best bakery, I did a few other errands in that part of town.  One resulted in upsetting news.  The other took three times longer than I’d anticipated.

Tomorrow is the Spousal Unit’s birthday.  I also have a group luncheon to attend.  I have to duck out of that early because we’re interviewing new R.N.s for Michael.  Summer school is bearing down on us and we really need more help.

So I’m a little stressed out, right?

I get home with John to discover my sister has rescued a baby robin from the clutches of our male cat, Hunter.  (That’s his name, job description, species niche, and favorite occupation.  Not bad for a single word. )  We suspect the baby fell out of its nest, because it’s too young to fly.  My sister set it on a branch in the camellia bushes out of the cats’ reach and we shut all three feline predators inside the house.

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I fed the baby robin some water with a small syringe.  We watched and waited, hoping its mother would appear.  Even if she did, how would she return her baby to the nest?  This was not a happy situation, especially with John looking on hoping everything would be OK.

Night was closing in.  I took the baby robin to the local native animal rescue.  Finding the place involved a wild ride that is exactly what kept me from getting my own car for so many years.  God and the police must have both been feeling kindly toward me.  I finally found the rescue center, which was part of a private residence.

Now came the hard part.  I had to leave the baby robin there and walk away.  I sat in my car and cried for a while.  I can call in a day or two and see how things are going.  I dread doing so, for all the obvious reasons.

What’s important here is no matter how horrible today was, once that baby bird turned up, everything fell into a very simple perspective.

Save the baby bird.

A while back I wrote a blog post about lighting a candle rather than cursing the darkness.  All the stress I’m mired in right now fell away before that one clear priority.

Save the baby bird.

I’ll let you know what happens.

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Filed under birthday, cats, Family, frustration, Goals, Lillian Csernica, mother, nature, neurodiversity, parenting, veterinarian, worry, Writing

A Special Needs Christmas Carol


by Lillian Csernica on December 15th, 2015

The holiday season has come round again.  It’s a stressful time for any family.  In a household where we already have all the demands of the special needs lifestyle, the additional claims on our time and sanity increase exponentially.

To show my support for all the caregivers who come under the heading of Family, I’ve rewritten The Twelve Days of Christmas to reflect the holiday season from our point of view.

The 12 Days of Christmas

as sung in an ASD household.

tantrum

On the first day of Christmas,

the spectrum gave to me

My child having a hissy.

medbottle

On the second day of Christmas,

the spectrum gave to me

Two late refills

and my child having a hissy.

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On the third day of Christmas

the spectrum gave to me

Three lost toys

Two late refills

and my child having a hissy.

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On the fourth day of Christmas

the spectrum gave to me

Four IEPs

Three lost toys

Two late refills

and my child having a hissy.

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On the fifth day of Christmas

the spectrum gave to me

Five bus breakdowns

Four IEPs

Three lost toys

Two late refills

and my child having a hissy.

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On the sixth day of Christmas

the spectrum gave to me

Six different meetings

Five bus breakdowns

Four IEPs

Three lost toys

Two late refills

and my child having a hissy.

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On the seventh day of Christmas

the spectrum gave to me

Seven calls a-waiting

Six different meetings

Five bus breakdowns

Four IEPs

Three lost toys

Two late refills

And my child having a hissy.

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On the eighth day of Christmas

the spectrum gave to me

Eight aides a-coughing

Seven calls a-waiting

Six different meetings

Five bus breakdowns

Four IEPs

Three lost toys

Two late refills

and my child having a hissy.

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On the ninth day of Christmas

the spectrum gave to me

Nine classmates fussing

Eight aides a-coughing

Seven calls a-waiting

Six different meetings

Five bus breakdowns

Four IEPs

Three lost toys

Two late refills

and my child having a hissy.

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On the tenth day of Christmas

the spectrum gave to me

Ten goldfish crackers

Nine classmates fussing

Eight aides a-coughing

Seven calls a-waiting

Six different meetings

Five bus breakdowns

Four IEPs

Three lost toys

Two late refills

and my child having a hissy.

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On the eleventh day of Christmas

the spectrum gave to me

Eleven wants repeated

Ten goldfish crackers

Nine classmates fussing

Eight aides a-coughing

Seven calls a-waiting

Six different meetings

Five bus breakdowns

Four IEPs

Three lost toys

Two late refills

and my child having a hissy.

1100

On the twelfth day of Christmas

the spectrum gave to me

Twelve migraines drumming

Eleven wants repeated

Ten goldfish crackers

Nine classmates fussing

Eight aides a-coughing

Seven calls a-waiting

Six different meetings

Five bus breakdowns

Four IEPs

Three lost toys

Two late refills

and my child having a hissy.

merry-christmas-banner-clipart

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Filed under autism, Christmas, Depression, doctors, Family, family tradition, frustration, Goals, hospital, housework, Humor, love, marriage, mother, neurodiversity, parenting, special education, Special needs, therapy, worry, Writing

Stress: Not Just For Breakfast Anymore!


by Lillian Csernica on March 26, 2013

It’s been a long day, the kind of day I want people to witness when they make ignorant, offensive remarks about my life.

I am not feeling well right now.  Never mind the details.  It’s enough to keep me from leaving the house.

John played a Narrator in his class’ Reader’s Theater production this morning.  He really wanted me to be there.  Fortunately, Chris decided to go in my place.  Chris doesn’t get to be part of school day events very often. so it was a nice surprise for John.  I was happy John’s teacher got to have some face-time with Chris.  I was hoping for a smooth afternoon since John was in a good state of mind after the performance.  Nope.  He was uncooperative and defiant and things wound up escalating into a full meltdown, teenage version.  By the time I worked up the strength to come downstairs and get in the middle of it, there was no way I could interrupt the cycle John goes through.  His aide couldn’t prevent it, and the confrontational style of other people in the house didn’t help matters.

On top of all of that, there was Michael‘s day.  It started off with a really unpleasant diaper situation.  Once that was cleaned up, it was time to get Michael ready for his MetroParacruz ride to the dentist.  (MP is a minivan service for the special needs and senior citizen population in our area.)  Due to my being out of action, my sister rode with Michael and then later, after John’s performance, Chris went to the appointment to add any required parental authorization.  Michael has what’s referred to as secretion management problems, which means he drools a lot.  That results in serious plaque build up on his teeth, which can cause various dental problems.  So every three months he has to get his teeth cleaned.  The problem is, in order for the dental hygienist to do a thorough job, Michael has to be put under anesthetic.   Michael needs more teeth pulled because more are coming in and the narrowness of his jaw due to hydrocephaly means there’s no room.  Convincing the insurance company to give us the anesthesiologist for oral surgery is very very difficult.

And this evening Michael is showing flu-like symptoms including vomiting, which is extremely dangerous for him because it can lead to aspiration pneumonia.

This is why I have all three kinds of insomnia.  I’m too stressed out to go to sleep for fear of what medical crisis might arise when I’m not awake to cope with it.   After about five years of experimentation, my current doctor and I have finally arrived at a combination of meds that helps me sleep without turning me into a zombie.  Sleep is good.  Sleep is essential.  Do not underestimate the importance of sleep.  Lack of sleep screws up your brain chemistry and that does bad things to the rest of you.

Having said all this, let me close by offering my prayers and support for all special needs families everywhere.  I know many of you have a lot harder than I do.

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Filed under Family, Special needs

Pop Quiz


by Lillian Csernica on March 14, 2013

Time for a little audience participation. I’ve got this 600 page manuscript sitting here next to me. My agent does not want it anywhere near her until I cut it down to the marketable length of 400 pages. paperstack4
So here’s The Question: Do I set myself a deadline of, oh, Memorial Day to get this monster whittled down to size?

Sully and Boo

6 Comments

March 14, 2013 · 3:53 am