by Lillian Csernica on October 26, 2014
Monday — Did one last copy edit on Sword Master, Flower Maiden before I emailed the manuscript to my agent. Does the story work? Will she like it? The waiting begins.
Tuesday — Chris and I took John to see his neurologist for a checkup. We discussed John’s medications and the difficulties he’s having with his schoolwork. The doctor was not happy to hear about the communication trouble we’ve been having with the various people who help John at school. The doctor’s orders: “Less homework, more social interaction.”
Wednesday — John’s triennial IEP. He’ll be sixteen at the end of next month, so that means this was the last triennial he would have before he graduates. That being the case, the school officials did all the appropriate assessments to compare those results with the assessments done when John was thirteen. This meeting took three and a half hours. Chris and I brought a letter from the neurologist giving his orders. I had copies of emails I’d exchanged with John’s caseworker/teacher. I asked for John’s one to one aide to be present. I went in there with a list of questions and concerns and I walked out with every single one of them answered and addressed. That was essential. We’re facing John’s “transition,” which means we have to start looking at how he will function in the community once he graduates from high school. This is stirring up all kinds of conflicting emotions inside me. It’s not easy to focus and make long term decisions.
Thursday — I had an appointment with my new therapist. Good timing on that one, right?
Friday — Another appointment, this one with my psychiatrist. He thinks I’m doing pretty well handling the daily ups and downs around here, to say nothing of the big stuff like the IEP.
Saturday — My mother and I took John down to the community center where he was part of a “Zombie Flash Mob.” He’d been attending the dance classes for three weekends, so he was looking forward to it. We got him dressed up in some old clothes that we slashed up and stained red here and there. The Mob organizers had makeup artists on hand, so John got quite the makeover. When he looked in the mirror, he must have jumped a foot! While we waited for Zero Hour, John and I joined the folks who were making masks. John made one that looked like “Raven” from the Teen Titans. I used green paint, green glitter, and pipe cleaners in red, brown, green and yellow to create Medusa!
Sunday — Here I am, folding clean laundry, putting up the last-minute Halloween decorations, and trying to catch up on everything else I had to push back this week. My mother is downstairs with John working on her Halloween costume. She’s going as a tree. That’s right, a tree. Complete with bark, leaves, a bird’s nest, and a squirrel. Mom will be entering a costume contest. Both Mom and my father contributed to my competitive streak. In my family we’re quite fond of trophies. 😀 Another thing we’re quite fond of is naps.