Tag Archives: miscarriage

#blogchallenge: Fortune Cookie #20


by Lillian Csernica on May 20, 2018

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Today’s fortune says:

A loved one is of utmost importance at this time.

SPECIAL NEEDS

I sat there on the generic brown couch, staring up at the TV screen mounted high in one corner. Hospitals. Designed to give you a crick in the neck. You were lying in bed looking up at the TV, or you were sitting in some “Family Lounge” praying the news was good or at least bearable.

It was four a.m. on a Tuesday in late April. I sat in the “Family Lounge” trying not to cry. One of the CNAs, Delia, slept on the other couch. Using her lunch break to take a nap. I didn’t want to wake her. She’d rather sleep than eat. That said a lot about how little sleep she generally got.

I knew all about sleep deprivation. Tommy was back in the hospital again. Another infection. The immune system of a premature baby isn’t very strong. Tommy had made it to age ten, but even so, none of his systems were all that strong. He held on. He kept breathing. His heart kept beating. His organs continued to develop. The doctors were amazed. If Tommy’s life had been a song, that would have been the chorus. The doctors were amazed. And so I sat there, recharging my phone, watching the minute hand of the clock move or staring at the blank black mirror of the plasma screen TV.

Tommy had to live, to go on surviving. If he didn’t, that would finish me. Losing Bobby had been hard enough. Eighteen weeks. Early rupture. He was fine. It was me, my body, that couldn’t carry him to term. I lost him. That horrible moment when I really understood the emptiness where he had been. He’d just started kicking. I was happy, really happy, for the first time in years. That lasted two days, maybe three. Then my water broke too soon, and the nightmare began.

I knew a lot about hospitals. I could write a Lonely Planet guidebook comparing the beds, the food in the cafeterias, what there was to do in the surrounding neighborhoods. I always knew where to find a bookstore, or at least a drugstore with a news stand. When Tommy had to spend a whole summer in the Pediatric Intensive Care Unit, I blew through at least a dozen books. When I finished them I’d leave some for any of the RNs who wanted them.

The clock said five a.m. Delia’s phone alarm went off. She sat up, smoothed her hair, tugged at her scrubs, then gave me that smile that was part pity and part professional compassion. She went back to work. The Infectious Disease unit. What fun. I’d want to burn my clothes and throw away my shoes every single night.

Two hours until shift change. The blood draws usually started at six a.m. so the results were ready in time for Rounds. That was a three hour window of muscle-knotting tension spent constantly on the alert for the five or ten minutes of the specialist’s time. Were the test results good? Did they show progress? Were we a day closer to discharge? The doctors were like Santa Claus. They appeared, dropped off their packets of information, then hurried on. So many more houses to visit, so many more patients to see. Instead of eight tiny reindeer, they had residents and physician’s assistants and sometimes a flock of student nurses who stood out like a flock of geese in their white scrubs. I often wondered if they made the students wear white scrubs so any mistake would leave a telltale mark. There are a lot of bodily fluids splashing around in hospitals, especially in the Infectious Disease unit.

Then came the empty hours until lunchtime. Linen changes. Emptying the catheter bag. Making sure Tommy’s pain levels were still under good control. Just awake enough to be bored, too worn out to do anything about it. I spent a lot of time reading to him, trying to find something entertaining on the hospital’s available TV channels, or just sitting there watching him sleep. It’s a terrible thing when you’re happy to see your child lying there unconscious because it’s the preferable alternative.

Stephen, my husband and Tommy’s father, spent his days at work maintaining the insurance coverage, paying the endless medical bills, keeping our life moving forward until that time when Tommy could come home again. He did his part and I did mine as I sat there alone, watching the empty black mirror of the big plasma screen.

END

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Filed under Blog challenges, doctors, Family, frustration, hospital, mother, parenting, PICU, Special needs, specialists, worry, Writing

Memory Eternal


by Lillian Csernica on February 21, 2018

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I know what it’s like to bury a child.

I lost my son James at 18 weeks when I ruptured early.

The first time I ever identified myself as a mother was when I signed the paperwork for my baby’s funeral arrangements. I’d never seen a coffin that small. Up to that point in my life, I’d never had reason to think about one or realize such a thing existed.

The day of the funeral, I stood there and had to see my baby wrapped in what would have been his first blanket, lying there in his little white satin-lined coffin. I had to stand there and watch while the priests chanted the funeral service and that little white coffin was lowered into that hole in the ground and I had to deal with knowing I’d never see my little boy grow up.

To the parents of all the children who have died in school shootings, I say I cannot imagine how much greater is the pain you’re being forced to suffer now. I never had the chance to get to know James, to see him smile or hear him laugh. You knew your sons and daughters. You watched them grow into fine young men and women with hopes and dreams for their futures.

Futures cut short by a tragedy that should not have been allowed to occur.

I know the agony I’ve had to live with, the tears I’ve shed every time I’ve visited my baby’s grave. I am so terribly sorry that all of you have been forced to experience the torment of such grief.

I promise you, I will do more than send you my thoughts and prayers. I will VOTE. I will MARCH. I will make phone calls and I will sign petitions. I will join the crowds chanting, “NEVER AGAIN!” until my throat is raw and my shirt is soaked with tears.

We must see to it that other children do not die. That other parents do not suffer the grief that you and I must endure. The children of this nation are our children. We must see to it they are safe.

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Filed under Depression, Family, family tradition, love, mother, parenting

The Comfort Zone: Are You In or Out?


by Lillian Csernica on September 5, 2017

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I’ve been reading a lot lately about how writers need to get out of their comfort zones. Apparently better writing is achieved once we leave our comfort zones and venture out into the wild terrain of ideas that scare the daylights out of us.

I’m not talking about horror per se. There are subjects that we all find distressing. The kind of material that people these days label with trigger warnings. Facts and stories and ideas which will hit us where we live, push on old bruises, maybe bring fresh pain to old scars. Such subjects are intensely painful and could be trauma triggers.

A trauma trigger is an experience that causes someone to recall a previous traumatic memory, although the trigger itself need not be frightening or traumatic and can be indirectly or superficially reminiscent of an earlier traumatic incident.

(Relevant tangent: If you’re interested in the debate about trigger warnings, I recommend reading The Trigger Warning Myth.)

While I can appreciate the need to test one’s boundaries and stretch one’s literary muscles, I do have two problems with all of these articles urging writers to get out of their comfort zones.

  1. The people giving this advice have no idea what’s outside my comfort zone. I might have some very good reasons for staying in it.
  2. There’s a crucial piece of information missing. Maybe it’s just the debate team in me, but I don’t see anybody defining the term “comfort zone.” (That’s why I keep linking to the definition every single time I use that phrase.) To me the proper starting point is figuring out precisely where our comfort zones begin and end. Once that’s mapped out, we know where to find terra incognita. We can point to the spot that says “Here there be dragons!”

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Time for painful honesty. For years now people have told me I should write about my experiences with my older son Michael. Bed rest in the hospital. The terror of the day he had to be delivered via emergency C-section. Every day and night of the three and a half months he remained in the hospital, coming close to dying time and time again.

Why don’t I write about that? Simple. I’ve been too busy living it. For most of Michael’s twenty-one years on this planet, my husband and I have considered it a good week if no medical emergency forced us to call 911.

Same with John. Sure, I could write about the day he got out the front door while I was changing Michael’s diaper. I had to dash out after him before he made it to the busy street. I tore my right calf muscle doing so. Then I still had to get up and run after him. I wound up in the ER that night, and came home on crutches. That added a whole new layer of difficulty to being primary caregiver for two special needs children.

What’s outside my comfort zone?

Miscarriage. Babies dying. Whether or not to turn off the life support.

Wondering if I’ll ever know the joys of being a grandmother.

Who will look after my boys once I’m dead.

And a few other matters that I’m not ready to talk about to anybody, even myself.

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Yes, I agree that “growing our comfort zones” is a worthwhile goal. I also think people who dish out such advice should be mindful of the dangers of doing so. These are hard times. Telling people to go rummaging around in the darker corners of their psyches for really juicy writing material is not a smart or a responsible thing to do.

For me, getting my own car again was a big step outside my comfort zone. I didn’t drive for years because of a Gordian knot of anxieties surrounding the subject of driving. Now I have a car. Now I drive all the time. Oh look, here I am writing about it!

For once I don’t mean to sound sarcastic. You decide when and if you want to step outside of your comfort zone. You decide just how far, and how often. It’s good to tell the stories that only you can tell. It’s more important to respect your own pain and your own right to privacy. You’ll know when the time is right.

For some excellent thoughts on why there’s nothing wrong with staying in your comfort zone, go see what Darius Foroux has to say.

 

 

 

 

 

 

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