by Lillian Csernica on June 18, 2016
I’ve been meaning to write more frequent blog posts. Life has gotten in the way in the form of being seriously short staffed where Michael is concerned. Right now I have two R.N.s and my sister, who does have experience with hospital and in-home care. With Michael out of school, we’re running two eight hour shifts per day. This means I have to pitch in as well. I’ve had to take four of the eight hour shifts, three 6:30 a.m to 2:30 p.m. and one 2:30 p.m. to 10:30 p.m.
Michael takes seven different medications. He needs at least two breathing treatments per day which include nebulizer treatment followed by three timed sessions with a percussive therapy vest. Diaper changes can be quite laborious depending on the nature and quantity of his output. Michael is twenty years old, close to six feet tall, and weighs 145 lb. He’s on the gangly side, so rolling him from one side to the other requires considerable effort.
In the morning I fully expect to need Naproxen, if not my carefully hoarded stash of Vicodin. I’m hoping the Vicodin won’t be necessary because I have an hour’s drive ahead of me in order to attend a writer’s group meeting.
Adding to my joy this week is a breakdown in communications with the supplier of my antidepressant medications. I did get an interim prescription for one of them from my doctor, but there’s been more difficulties with the other prescription. Tomorrow will be Day 3 without Pristiq. I will either be what some people might consider manic, or I will have no patience with obstacles and no filters in place to moderate my reactions to such obstacles.
Not really the best frame of mind for giving critiques in a writer’s group setting.
On Sunday we interview yet another R.N. I’m really hoping she turns out to be a keeper. We’re stretched mighty thin. Summer school starts next week, but we still need a third R.N. to take some of the load off of my sister.
All of this leads me to think about what we’ll be facing once Michael is no longer in school. He has two years left in the County program. Then we’ll have to find other ways to get him out of the house and keep him occupied so he doesn’t languish in bed for the majority of his day. That’s not good for his mental or physical health.
Doesn’t do a whole lot for mine, either.