by Lillian Csernica on March 26, 2013
It’s been a long day, the kind of day I want people to witness when they make ignorant, offensive remarks about my life.
I am not feeling well right now. Never mind the details. It’s enough to keep me from leaving the house.
John played a Narrator in his class’ Reader’s Theater production this morning. He really wanted me to be there. Fortunately, Chris decided to go in my place. Chris doesn’t get to be part of school day events very often. so it was a nice surprise for John. I was happy John’s teacher got to have some face-time with Chris. I was hoping for a smooth afternoon since John was in a good state of mind after the performance. Nope. He was uncooperative and defiant and things wound up escalating into a full meltdown, teenage version. By the time I worked up the strength to come downstairs and get in the middle of it, there was no way I could interrupt the cycle John goes through. His aide couldn’t prevent it, and the confrontational style of other people in the house didn’t help matters.
On top of all of that, there was special needs and senior citizen population in our area.) Due to my being out of action, my sister rode with Michael and then later, after John’s performance, Chris went to the appointment to add any required parental authorization. Michael has what’s referred to as secretion management problems, which means he drools a lot. That results in serious plaque build up on his teeth, which can cause various dental problems. So every three months he has to get his teeth cleaned. The problem is, in order for the dental hygienist to do a thorough job, Michael has to be put under anesthetic. Michael needs more teeth pulled because more are coming in and the narrowness of his jaw due to hydrocephaly means there’s no room. Convincing the insurance company to give us the anesthesiologist for oral surgery is very very difficult.‘s day. It started off with a really unpleasant diaper situation. Once that was cleaned up, it was time to get Michael ready for his MetroParacruz ride to the dentist. ( is a minivan service for the
This is why I have all three kinds of insomnia. I’m too stressed out to go to sleep for fear of what medical crisis might arise when I’m not awake to cope with it. After about five years of experimentation, my current doctor and I have finally arrived at a combination of meds that helps me sleep without turning me into a zombie. Sleep is good. Sleep is essential. Do not underestimate the importance of sleep. Lack of sleep screws up your brain chemistry and that does bad things to the rest of you.
Having said all this, let me close by offering my prayers and support for all special needs families everywhere. I know many of you have a lot harder than I do.