Category Archives: Special needs

Caring for two teenage boys, one with cerebral palsy and seizure disorder, one with low spectrum autism.

The One Writing Skill You Must Have


by Lillian Csernica on December 11, 2017

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Here we are in the holiday season. This time of year will stress out anybody, even those people lucky enough to have a “normal” family life. Writers often come from dysfunctional families. Writers often have mental health issues. Put it all together and the holiday season can be quite a gauntlet to run, between day jobs, holiday preparations, family gatherings, and the desperate struggle for time and space write.

My therapist taught me a skill that I will now pass along to you. This skill is designed to buy you the mental and emotional space you need to survive when you find yourself overwhelmed. Your mileage may vary, but give it a try. Three simple words:

Achieve literary distance.

How does one do this? Here’s my method. I always have my tote bag with me. At the moment it contains four notebooks, two manuscripts, one of those zippered pouches for pens, and a few other odds and ends. I take the tote bag everywhere. When life gets too intense, I pull out a notebook and a pen. If I’m stuck in a line, I spot the most interesting people and jot down quick lists of their notable physical and behavioral traits. If I’m in a waiting room, I might write a scene involving two of the people waiting there also.

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The point here is to derail our anxiety by making our trains of thought switch tracks. Becoming consciously more observant puts us into a more objective state of mind. Sometimes what we really need is to get out of our own heads. By calling on the skills that help us achieve literary distance, we can at least get out of the Anxiety Attic and go hang out in the Creativity Corner.  When we deliberately shift our focus outward, we may very well lower our anxiety levels.

I know this works for me. I get all stressed out about being on time, getting everything done according to my To Do list, or I’m all knotted up mentally because of a conflict with a family member.  When I achieve literary distance, that helps me step back, take that deep breath, connect pen to paper, and re-establish a calmer, more flexible state of mind.

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Make this skill work for you. If you like texting ideas on the Notepad function of your phone, go for it. If you need a blank journal with no lines and a few broken crayons, more power to you. If you just want to sit in a comfy spot and take some mental notes along with a few deep breaths, that’s good too.

Writing is our superpower. We can use it to rescue ourselves.

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Filed under Christmas, creativity, Depression, editing, Family, Fiction, frustration, Lillian Csernica, neurodiversity, Special needs, therapy, Writing

NaNoWriMo 2017: Fantasy for Fun & Profit


by Lillian Csernica on October 20, 2017

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That’s right. I’ve gone and done it. I have officially signed up for NaNoWriMo 2017.

I’m in the editing stage of The Flower Maiden Saga, so this year I’m going back to basics and writing a good old-fashioned sword & sorcery novel. When I first started to read fantasy, I gravitated to C.L. Moore’s Jirel of Joiry, Fritz Lieber’s Fafhrd and the Grey Mouser, and of course Conan the Barbarian. Red Nails remains one of the most chilling and thrilling stories of its kind.

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Now the tricky part will be getting my daily 1667 words written while I’m doing all of this November stuff as well:

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A road trip up to EuCon in Eugene, Oregon. John will be teaching drawing classes in the Art Bus, which is sponsored by Imagination International Incorporated, the folks who make Copic markers.

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Making Thanksgiving happen.

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Celebrating John’s birthday.

And the usual daily chaos that keeps me on my toes.

All this and write 50,000 words? 200 pages? No problem!

Stay tuned, folks. Let’s see if I can make it to the end of November before my head explodes!

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How to Keep Halloween Safe and Happy


by Lillian Csernica on October 3, 2017

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Holidays at my house are always a bit out of the ordinary. We don’t do ordinary, or normal, or any of those just-like-everybody-else words.

My boys are too old to trick-or-treat these days, but they do love dressing up in costume, and they will never say no to treats.

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My older son does not eat by mouth. He has a g-tube which feeds a liquid diet directly into his stomach. He loves toys, games, arts and crafts, so non-food treats are fine with him.

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My younger son is allergic to peanuts. They are EVERYWHERE, especially when it comes to candy. There are a lot of safe candy options, as well as healthy alternatives and non-food items.

For the past four years I have been careful to have two bowls for trick-or-treaters. One has a mix of chocolate and non-chocolate candy. The other has a variety of non-food treats such as Halloween-themed bubbles, stickers, baby Slinkies, and glow sticks. I also keep a supply of prizes I give out to individuals and/or families who have created costumes that I think are really special.

Two years ago, I discovered the Teal Pumpkin Project.

Families like mine all over the country (and quite possibly the world) face the dilemma of wanting their children to participate in Halloween and enjoy all the fun the other kids are having. When you put a teal pumpkin on the porch, you send a very bright and welcome signal. You tell families like mine that you get it. You are aware of food allergies and related health problems and you are prepared. Come one, come all! You have goodies to suit everybody’s wants and needs.

This Halloween I look forward to putting my teal pumpkin in a prominent place on my porch so everybody will know when they yell “Trick or Treat!” at my house, they won’t go away empty-handed. On the contrary. We usually have so much that by the end of the night I encourage the older trick or treaters to take a handful.

Please support the Teal Pumpkin Project. Let’s make this a safe, happy Halloween for everyone!

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5 Things You May Not Know About Having Multiple Children with Special Needs


I have just discovered Jenn and her amazing family. As a mother with more than one child who has special needs, I know how complicated it can be to just get through the day. To me, Jenn is a superhero. Read on and you’ll see why.

Special Needs Essentials Blog

We’re happy to introduce a new gust blogger to the Special Needs Essentials community,  Jenn from Positive Parenting Specialized. We are glad to have her unique perspective on our blog!

Hi there, I’m Jenn, a single mom to a seventeen year old with Global Depression, a fifteen year old with Asperger’s Syndrome (and a hand full of co-morbid diagnosis), a 10 year old with autism, Type 1 Diabetes, and Generalized Anxiety Disorder, and a 7 year old fireball with Disruptive Behavior Disorder, Sensory Processing Disorder, Learning Challenges, and Anxiety Disorder. I am in my forties and have started blogging to try to support the kids and myself. I love being a work from home mom, praying often that it stays this way.

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Life with four children who all have unique challenges might be surprising. Maybe some of these points are “No Brainers.” See for yourself!

Here are Five Things…

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The Comfort Zone: Are You In or Out?


by Lillian Csernica on September 5, 2017

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I’ve been reading a lot lately about how writers need to get out of their comfort zones. Apparently better writing is achieved once we leave our comfort zones and venture out into the wild terrain of ideas that scare the daylights out of us.

I’m not talking about horror per se. There are subjects that we all find distressing. The kind of material that people these days label with trigger warnings. Facts and stories and ideas which will hit us where we live, push on old bruises, maybe bring fresh pain to old scars. Such subjects are intensely painful and could be trauma triggers.

A trauma trigger is an experience that causes someone to recall a previous traumatic memory, although the trigger itself need not be frightening or traumatic and can be indirectly or superficially reminiscent of an earlier traumatic incident.

(Relevant tangent: If you’re interested in the debate about trigger warnings, I recommend reading The Trigger Warning Myth.)

While I can appreciate the need to test one’s boundaries and stretch one’s literary muscles, I do have two problems with all of these articles urging writers to get out of their comfort zones.

  1. The people giving this advice have no idea what’s outside my comfort zone. I might have some very good reasons for staying in it.
  2. There’s a crucial piece of information missing. Maybe it’s just the debate team in me, but I don’t see anybody defining the term “comfort zone.” (That’s why I keep linking to the definition every single time I use that phrase.) To me the proper starting point is figuring out precisely where our comfort zones begin and end. Once that’s mapped out, we know where to find terra incognita. We can point to the spot that says “Here there be dragons!”

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Time for painful honesty. For years now people have told me I should write about my experiences with my older son Michael. Bed rest in the hospital. The terror of the day he had to be delivered via emergency C-section. Every day and night of the three and a half months he remained in the hospital, coming close to dying time and time again.

Why don’t I write about that? Simple. I’ve been too busy living it. For most of Michael’s twenty-one years on this planet, my husband and I have considered it a good week if no medical emergency forced us to call 911.

Same with John. Sure, I could write about the day he got out the front door while I was changing Michael’s diaper. I had to dash out after him before he made it to the busy street. I tore my right calf muscle doing so. Then I still had to get up and run after him. I wound up in the ER that night, and came home on crutches. That added a whole new layer of difficulty to being primary caregiver for two special needs children.

What’s outside my comfort zone?

Miscarriage. Babies dying. Whether or not to turn off the life support.

Wondering if I’ll ever know the joys of being a grandmother.

Who will look after my boys once I’m dead.

And a few other matters that I’m not ready to talk about to anybody, even myself.

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Yes, I agree that “growing our comfort zones” is a worthwhile goal. I also think people who dish out such advice should be mindful of the dangers of doing so. These are hard times. Telling people to go rummaging around in the darker corners of their psyches for really juicy writing material is not a smart or a responsible thing to do.

For me, getting my own car again was a big step outside my comfort zone. I didn’t drive for years because of a Gordian knot of anxieties surrounding the subject of driving. Now I have a car. Now I drive all the time. Oh look, here I am writing about it!

For once I don’t mean to sound sarcastic. You decide when and if you want to step outside of your comfort zone. You decide just how far, and how often. It’s good to tell the stories that only you can tell. It’s more important to respect your own pain and your own right to privacy. You’ll know when the time is right.

For some excellent thoughts on why there’s nothing wrong with staying in your comfort zone, go see what Darius Foroux has to say.

 

 

 

 

 

 

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All Writers Need This Skill


by Lillian Csernica on August 22, 2017

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What is that skill? Eavesdropping.

From Wikipedia:

An eavesdropper was someone who stands at the eavesdrop (where the water drops, i.e., next to the house) so as to hear what is said within. The PBS documentaries, Inside the Court of Henry VIII (April 8, 2015)[3] and Secrets of Henry VIII’s Palace (June 30, 2013) include segments that display and discuss “eavedrops”, carved wooden figures Henry VIII had built into the eaves (overhanging edges of the beams in the ceiling) of Hampton Court to discourage unwanted gossip or dissension from the King’s wishes and rule, to foment paranoia and fear,[4] and demonstrate that everything said there was being overheard; literally, that the walls had ears.[5]

I recently made the observation that cell phones have taken all the fun out of eavesdropping. When I said this, I was referring to texting. People have all kinds of conversations that people nearby can’t overhear, aside from the clicking of the keyboard.

A friend of mine pointed out that I was quite mistaken. He lives in San Francisco and makes frequent use of public transit. This gives him the opportunity to listen in on the amazing variety of really personal subjects people discuss when making actual calls on their cell phones.

Good point! This makes me feel better, even though most of the conversations I do overhear aren’t worth the time or attention.

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Eavesdropping is like panning for gold. You have to sift through a lot of mud before you see the gleam of real treasure. That one gleam can spark an idea that makes all that mud worthwhile.

When my younger son was little, he did what all little kids do, which is eat with his hands. At that time we had four cats in the house. Put these two facts together, and you get the day I heard myself say:

“Don’t get the cat sticky!”

People say the most absurd things, especially when they’re trying to be clever. I was sitting in the local Italian bakery on Sunday, writing in my journal while I ate a Lobster Tail. (I know, it’s not on my diet. I was celebrating my latest sale of a short story.) Two women came in and studied the goodies in the bakery cases. One said,

“The gelato is good, but the pastries are just a little too Italian for me.”

Sorry? What? If she didn’t like Italian pastries, why on earth had she come to an Italian bakery? Questions like this can get your imagination fired up. I could brainstorm ten crazy answers to that question. At least one might be worth building into a new story.

One of the greatest proofs of the value of eavesdropping is Harlan Ellison‘s short story Jeffty is Five. Mr. Ellison has said that the title came from a conversation he overheard. The actual statement was, “Jeff is fine. He’s always fine.” By hearing it as “Jeff is five. He’s always five.”, Mr. Ellison found the seed of an idea. It flowered into a story that went on to win the Nebula Award, the Hugo Award, and a nomination for the World Fantasy Award.

 

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The Writer’s Spellbook


by Lillian Csernica on August 1, 2017

AVAILABLE NOW ON SMASHWORDS!

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One of the most important elements of a fantasy novel or a game world is the magic system. A logical and consistent magic system will do a lot to help improve the quality of the story… A better magic system means a better story, and a better story means more readers!

PLENTY OF FORMATS TO CHOOSE FROM!

EPUB MOBI PDF IRL PDB TXT HTML

Whether you’re a writer or a gamer, a graphic novelist or an historical reenactor, The Writer’s Spellbook will give you step by step guidance in making the crucial decisions that will bring your fantasy world to life.

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Universal Fun!


by Lillian Csernica on June 24, 2017

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Tomorrow John and I will fly down to Los Angeles and spend a few days enjoying the wonders of Universal Studios Hollywood.

John has been talking about seeing Universal Studios ever since he first heard about it many years ago. Chris and I decided that a trip to this previously unexplored land of movie magic makes the perfect graduation gift for our boy.

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John and I have studied the map. We’ve discussed what we each want to see the most. Today we’ve been packing our bags. Tomorrow we take our first plane trip together. I’m pretty sure what John is looking forward to the most is The Wizarding World of Harry Potter.

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Me, I’m looking forward to the air conditioning on the plane, at the hotel, and on many of the rides. I’m not a big fan of heat, preferring autumn and winter to summer. I suppose this is an indicator of my advancing years. Insane roller coasters are great, but they lost their appeal for me after I reached my late twenties.

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Even so, I can’t wait to watch the Special Effects Show with John, to get silly in the Despicable Me Minion Mayhem area, and probably scream at least once on the Jurassic Park ride. Best of all, I finally get to drink butter beer and hang out at Ollivander’s where Harry Potter’s wand chose him!

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My grandfather worked in the movies. My mother has appeared as an extra in several. I did some writing for the movies, once upon a time. And now my son loves movies just as much as the previous generations in our family have.

Watch for my trip report once we’re home again!

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Supreme Court Supports Special Needs Education


by Lillian Csernica on March 22, 2017

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Today the Supreme Court ruled to improve educational benefits for special needs students!

This is wonderful news. With Trump in office, I’ve been very worried about what programs will remain in place to support my sons as they “age out” of the county educational system. This sets a precedent that will prompt positive decision-making!

Get the details here!

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Day 14: How’s the Weight Loss Program Working?


by Lillian Csernica on February 2, 2017

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Answer: Fourteen pounds in fourteen days. Yes, that’s right. I’ve lost on average one pound every day since I began the program.

This is not a testimonial or an infomercial. This is a celebration of overcoming a problem I’ve had since I was ten years old.

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I like eating vegetables. I like cooking. I can’t remember how I got into the rut of relying mostly on fast food or microwave dinners. When the kids were little I had to eat fast when I had a free moment, sure. The boys are legal adults now. It’s high time I abandoned the old instant gratification pattern for long term health and well-being.

All this without a specific exercise program. I’m still wearing the knee brace. There’s a communication problem between my doctor and the physical therapy people. I am in the middle, trying to get that sorted out. Until I know what I can and can’t do while my knee recuperates, I have to be careful.

Meanwhile, let me just say that I love Quest protein bars. So many flavors to choose from!

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