Category Archives: special education

How to Keep Halloween Safe and Happy


by Lillian Csernica on October 3, 2017

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Holidays at my house are always a bit out of the ordinary. We don’t do ordinary, or normal, or any of those just-like-everybody-else words.

My boys are too old to trick-or-treat these days, but they do love dressing up in costume, and they will never say no to treats.

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My older son does not eat by mouth. He has a g-tube which feeds a liquid diet directly into his stomach. He loves toys, games, arts and crafts, so non-food treats are fine with him.

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My younger son is allergic to peanuts. They are EVERYWHERE, especially when it comes to candy. There are a lot of safe candy options, as well as healthy alternatives and non-food items.

For the past four years I have been careful to have two bowls for trick-or-treaters. One has a mix of chocolate and non-chocolate candy. The other has a variety of non-food treats such as Halloween-themed bubbles, stickers, baby Slinkies, and glow sticks. I also keep a supply of prizes I give out to individuals and/or families who have created costumes that I think are really special.

Two years ago, I discovered the Teal Pumpkin Project.

Families like mine all over the country (and quite possibly the world) face the dilemma of wanting their children to participate in Halloween and enjoy all the fun the other kids are having. When you put a teal pumpkin on the porch, you send a very bright and welcome signal. You tell families like mine that you get it. You are aware of food allergies and related health problems and you are prepared. Come one, come all! You have goodies to suit everybody’s wants and needs.

This Halloween I look forward to putting my teal pumpkin in a prominent place on my porch so everybody will know when they yell “Trick or Treat!” at my house, they won’t go away empty-handed. On the contrary. We usually have so much that by the end of the night I encourage the older trick or treaters to take a handful.

Please support the Teal Pumpkin Project. Let’s make this a safe, happy Halloween for everyone!

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Filed under autism, charity, chocolate, classics, cosplay, creativity, doctors, Family, family tradition, Food, frustration, Halloween, Horror, neurodiversity, parenting, special education, Special needs, therapy

5 Things You May Not Know About Having Multiple Children with Special Needs


I have just discovered Jenn and her amazing family. As a mother with more than one child who has special needs, I know how complicated it can be to just get through the day. To me, Jenn is a superhero. Read on and you’ll see why.

Special Needs Essentials Blog

We’re happy to introduce a new gust blogger to the Special Needs Essentials community,  Jenn from Positive Parenting Specialized. We are glad to have her unique perspective on our blog!

Hi there, I’m Jenn, a single mom to a seventeen year old with Global Depression, a fifteen year old with Asperger’s Syndrome (and a hand full of co-morbid diagnosis), a 10 year old with autism, Type 1 Diabetes, and Generalized Anxiety Disorder, and a 7 year old fireball with Disruptive Behavior Disorder, Sensory Processing Disorder, Learning Challenges, and Anxiety Disorder. I am in my forties and have started blogging to try to support the kids and myself. I love being a work from home mom, praying often that it stays this way.

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Life with four children who all have unique challenges might be surprising. Maybe some of these points are “No Brainers.” See for yourself!

Here are Five Things…

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Filed under autism, Depression, doctors, Family, Food, frustration, Goals, mother, neurodiversity, parenting, special education, Special needs, worry

Supreme Court Supports Special Needs Education


by Lillian Csernica on March 22, 2017

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Today the Supreme Court ruled to improve educational benefits for special needs students!

This is wonderful news. With Trump in office, I’ve been very worried about what programs will remain in place to support my sons as they “age out” of the county educational system. This sets a precedent that will prompt positive decision-making!

Get the details here!

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Filed under autism, creativity, doctors, Family, Goals, mother, neurodiversity, parenting, special education, Special needs, therapy, Writing

Breaking up with Ben & Jerry


by Lillian Csernica on January 18, 2017

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Tonight I consumed my last pint of Ben & Jerry’s Karamel Sutra.

Tomorrow morning I begin a medically supervised accelerated weight loss program.

When I was ten years old, my parents took me to see a dietician. I was already 5’6″, and already 152 lbs. Not good. Now I’m forty years older and 100 lbs heavier. Time to stop kidding myself about the health problems that are right around the corner if I don’t do something about my weight problem RIGHT NOW.

This is not a New Year’s Resolution. This is me deciding to act like a grown-up and stop indulging myself while blaming the depression, the difficulty of my life, some writing setback, or whatever other chaos afflicts me at that moment.

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I have a plan. I have professionals backing me. I have a guidebook and a journal and a food scale and the necessary supplements. I’m going to do this.

There are so many stories waiting to be written.

There are so many birthdays and Christmases and personal triumphs ahead for both Michael and John.

There are so many places in the world I have yet to see, just in Japan alone!

There may be setbacks. That’s OK. I know how to deal with setbacks. You just take a deep breath, focus on the next indicated action, and start moving forward again.

I can do this. I will do this. For me, for the kids, for my writing.

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Filed under chocolate, Christmas, Conventions, Depression, doctors, editing, Family, fantasy, Fiction, Food, frustration, Goals, Japan, Lillian Csernica, parenting, perspective, publication, research, Self-image, special education, therapy, Writing

How to Plan For Success


by Lillian Csernica on January 2, 2017

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I’ve been doing a lot of research lately. The marketplace for writers is more competitive than ever. There are plenty of articles and blog posts and other advice venues full of tips on how to get where we want to go with our writing. It gets confusing, and not a little overwhelming.

As I’ve said in other posts, I’m not a fan of making New Year’s Resolutions. Too much pressure, especially at a time of year when we’re all recovery from the mad dash of the holidays. I do believe in setting goals and making plans. With that in mind, allow me to share with you my plan for 2017.

To be successful as a writer, I must make a daily effort in each of these three areas:

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WRITING

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EDITING

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PROMOTION

I’ve been reading up on the work habits of some of my favorite Big Names, such as William Nolan, who says he writes for three hours a day. Some years ago when I had the pleasure of meeting Roger Zelazny, he told me he sat down at the keyboard four times a day and wrote at least three sentences each time. During at least one of those times his writing would take off and he’d get a satisfactory amount of work done for that day. Esther Friesner and Janet Evanovich have also provided some excellent guidance about figuring out one’s optimal work habits.

On January 9th, school is back in session here in our neck of the woods. On that day I will launch my new work schedule. My office hours will be from 10 a.m. until 2 p.m., with the exception of days when I’ve scheduled appointments.

Now here’s the breakdown of my work time, a division of labor which I hope will lead to making progress on several fronts:

10 a.m. until noon — Writing fresh material.

Noon to 1 p.m. — Editing short fiction from what I call my Mending Pile. I may well write more on these projects as well.

1 p.m. to 2 p.m. Pursuing the noble art of Shameless Self-Promotion. Blogging. Tweeting. Researching markets. Trading reviews. I must promote my own work, but I also have a duty to do my share of promoting the anthologies that include my stories.

My boys come home from school around 2:30 p.m. I want to be available for help with their homework, listening to how their days have gone, and in general being a good Mom. It’s very easy for me to stay shut away in my Ivory Tower while I’m working. That’s not OK. I can do that later after the boys are asleep.

I also want to be sure I have time during daylight to get out for a walk. I need more exercise, more time in the sun, and more contact with my neighbors. I may be an extrovert by nature, but the writing life tends to encourage being a recluse if you have a passion for research or you get your hands on a good book and lose all track of time.

Wish me luck! I will keep you posted on how well my plan is working.

 

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Filed under editing, Family, fantasy, Fiction, Goals, historical fiction, Lillian Csernica, mother, parenting, publication, research, special education, steampunk, Writing

They Blinded Me with Science!


by Lillian Csernica on November 19, 2016

 

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Today I took my son John and his two best friend to the Museum of Technology and Innovation in San Jose, CA. This was John’s big birthday wish. Despite lack of sleep, heavy rain, and my general preference for sparing myself the ordeal of driving over  Hwy 17, we arrived only a little while after the museum opened at 10 a.m.

Oh my stars and garters. We did everything there was to do, and some of it twice!

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The boys built a catapult for firing a small wooden ball across the model of a river. That particular activity comes with a tool kit and a wall of supplies, which including PVC piping, thin wooden dowels, fat plastic screws, and all the blue or green rubber bands you could possibly need.

Once the catapult was built, the boys carried it over to the river, fired it successfully, and received the “I’m a Mechanical Engineer” magnets awarded to everyone whose device was successful.

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The general theme of John’s birthday this year is Superman. With this in mind, the trio of teenage mad scientists built a robot that stood about three feet high. It had colored lights that rotated through the spectrum. It had a shield on the front that spun around, along with two smaller shields, one on the end of each arm. It had infrared sensors and a motion detector. It even had a cape!

Once they’d finished building the robot, the boys recruited a staff member to help them attach the electronic brain. With that in place they could begin programming the robot. This took some trial and error, some experimentation. I am proud to say Team John got the superhero robot working!

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Another high point included each of the boys designing a roller coaster. Once complete, the video equivalent of the design played on a large screen. The really great part was the four seat ride car equipped with a low grade version of DBox. Each of the boys’ designs managed to make me want to throw up, so I pronounced them all a success.

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The Gift Shop is full of amazing educational toys, science experiments, books, jewelry, and a great space-themed “ugly Christmas sweatshirt.” John chose a gyroscope, which he’s learned to operate quite well.

The Gift Shop included one of those bins of red jasper, moss agate, tiger’s eye, and the usual quartz and agate dyed a hideous blue or pink. I can’t resist rocks, so I was digging through the bin looking for something worthwhile. A young man (in his teens) happened to be interested in the rocks as well. We got to talking about various stones. He kept asking me questions. I know enough to identify many of the more common rocks, along with the more popular semiprecious stones. I also know a fair amount of folklore regarding the properties of stones.

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The young man listened in apparent fascination. Every time I apologized for going on and on about a lifetime hobby, he wanted to know even more. We must have been talking for a good fifteen minutes when I finally had to excuse myself to go find out what John and his friends were doing. It’s wonderful to meet someone hungry for knowledge in a subject that also fascinates me.

Tomorrow we have John’s official birthday party with cake, ice cream, and presents. On the anniversary of his actual birth, we plan to see Fantastic Beasts. And then comes Thanksgiving!

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Filed under Family, family tradition, Lillian Csernica, mother, neurodiversity, parenting, special education, travel, Writing

A Personal Glimpse Inside Autism and ADHD


This weekend Withteeth and I went to a writing conference. I haven’t talked about my writing in a while, but it is still something I’m pursuing. However, conferences are incredibly difficult for me. As such, I wanted to write a bit about the struggles with anxiety and how to deal with it both for people […]

via How to Deal With Anxiety — hessianwithteeth

I’d like to express my gratitude to hessianwithteeth for giving us all these insights into such complex and demanding experiences.

It’s so wonderful that people with visible disabilities are gaining recognition and inclusiveness. Life can be even more difficult for people with conditions that can’t be seen from the outside. My own Major Depressive Disorder has been gaining the upper hand these past two weeks, making this issue all the more immediate and important to me.

Remember. You are not alone!

Lillian

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Filed under autism, Conventions, Depression, frustration, Goals, neurodiversity, publication, Self-image, special education, therapy, worry, Writing

See Me Live and In Person!


by Lillian Csernica on May 27, 2016

Come one, come all!  See me make a public spectacle of myself in the best sense as I talk about writing and history.  I’ll be demonstrating the making of Victorian yarn dolls!  Looking forward to seeing you there!

 

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BayCon 2016: It’s All About Space!

Magic Vs. Religion

Friday 13:00 – 14:30, Collaborate 2 (San Mateo Marriott)

Does it matter to the characters? Does it matter to the readers?

Jay Hartlove (M), Lillian Csernica, Maya Kaathryn Bohnhoff, Maria Nieto, Teresa Edgerton

Monks in Space

Saturday 10:00 – 11:30, Synergy 5 (San Mateo Marriott)

Many monastic traditions stress the importance of silence and solitude. Leaving behind all the material comforts of Earth for the “final frontier” of dwelling in a monastic community or as a hermit in space would take on additional significance and spiritual impact. Christianity, Buddhism, Hinduism and Jainism all have monastic traditions. The First Nation Peoples the traditions of solitude, fasting, and appealing to the spirits to grant a vision of that person’s purpose in life. The mission into space could be a vision quest, or the result of it!

Lillian Csernica (M), Mrs. Laurel Anne Hill, Jennifer Nestojko, G. David Nordley

Autograph Session: Csernica, MacEwen and Wade

Saturday 14:00 – 15:00, Convene Lobby (San Mateo Marriott)

Juliette Wade, Lillian Csernica, Patricia H. MacEwen

The Space To Move Forward

Sunday 16:00 – 17:30, Connect 1 (San Mateo Marriott)

Using creativity to counter depression, PTSD and survivors guilt

Steven Mix (M), Lillian Csernica, Margaret McGaffey Fisk, Fr John Blaker

So You’re Ready to Publish

Monday 13:00 – 14:30, Connect 1 (San Mateo Marriott)

Do you Self-Publish or Traditiional Publish? Get an agent or try to go it alone?

J. L. Doty (M), Lillian Csernica, Teresa Edgerton, Kyle Aisteach

 

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Clockwork Alchemy: The Arts of Steampunk
The Undiscovered Countries

Saturday 7pm – 8:50pm Location: The Academy (San Martin Room)

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DIY Victorian Yarn Dolls

Sunday 10am – 11:50am Location: The Workshop (San Juan Room)

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The 3 Rules of Writing Historic Fiction

Monday 11am – 11:50am Location: Author’s Salon (Monterey Room)

 

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Why Permission Slips are Still Essential


by Lillian Csernica on May 12, 2016

Once again, my sons’ high school administration has made me furious.

Earlier this week John came home with a full color brochure full of quotations from famous people and some really disturbing photos.  The subject?  The cruel and brutal treatment of farm animals and how they are killed and processed for our food.

Horrifying?  Oh yes.  Was that all?  Oh no.

There was a video.  Plenty of gross, heart-wrenching detail.

Whoever was behind this went for the hat trick by providing a speaker who hammered the message home even further.

John was really upset.  I sent an email to his teacher/caseworker expressing my outrage over having not been allowed any kind of parental review of such disturbing material. I asked very clearly to know who had approved this material for the class.

As usual, she didn’t know a thing about it and said she’d look into it.  The next day I got an email from her saying she’d spoken to the Health class teacher who told her some other students had also been upset by the subject matter.  Really?  Gosh, who could have seen that coming?

Nobody answered my question about  who approved the material in the first place.

John’s teacher/caseworker assured me this would be taken into consideration for next year.  What about this year?  What about these students?  What about the damage that has already been done?

I have followed procedure by contacting John’s teacher/caseworker.  I’m in the process of making an appointment to talk to the principal.  I don’t expect much.  The school year is almost over and the administration will probably just make the usual soothing noises and promises of doing better next year.

Not good enough.

I will have a name, and if I don’t get one, I’m going to keep going up the chain of command until somebody takes responsibility for this.

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Filed under autism, Family, Food, frustration, Horror, Lillian Csernica, nature, neurodiversity, parenting, special education, veterinarian

Counting Down to Christmas


by Lillian Csernica on December 20th, 2015

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If I didn’t keep a running To Do list, I don’t know how I’d get anything done.  When I’m stressed out I tend to lose my long range focus and the ability to structure my time effectively.  I’ve done a lot of my shopping online this year.  The rain coming down in buckets outside my window makes me very happy for that option.

This year has been such an ordeal for our family.  I decided back in November to pay attention to all those articles on managing holiday stress and choose the activities most important and meaningful for both me and the boys.

Here’s what got checked off the To Do list this weekend:

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On Saturday night I took John to “The Nutcracker.”  He’s been asking to go tothe ballet for a month or two now.  We know he enjoys seeing and hearing a live orchestra perform.  I think the main attraction of the ballet was A) the costumes for this particular show and B) the emphasis on all those pretty girls with their long legs.

The Santa Cruz Ballet Theater put on a marvelous performance.  Hearing Tchaikovsky played live was a treat in itself.  The production values and the special effects left both me and John wide-eyed with wonder.  As for the dancing….  Wow.  The Snow Queen and her Cavalier made it seem like gravity had no power over them at all.  This was the first of John’s Christmas presents.  He kept saying it was “Amazing!”

John and I had dinner on Pacific Avenue after the show, talking about our favorite parts of the show.  Despite the 40+ degree weather, we stopped in at Cold Stone Creamery for some dark chocolate peppermint ice cream.   Oh my stars and garters.  That was heaven on a spoon!

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Today Chris and John got our Christmas tree.  It’s become a tradition for the two of them to go to a tree farm and cut down a fresh tree.  I had to admire their determination.  Soon after they left, the skies darkened and it started raining.  They did return victorious, if a little damp.

John has graduated to stringing the lights on the tree himself.  He loves the colored lights that blink on and off and change colors in varying patterns.  Out came all the boxes from the garage with our wide variety of Christmas ornaments, table linens, and John’s personal treasure, his Peanuts cuckoo clock.  On the hour, Snoopy comes out where the cuckoo would be and the Peanuts theme song plays.  We put this up only during the holiday season.

Once the lights and gold tinsel garlands were in place, Michael sat in his wheelchair to help choose ornaments and where they should go.  As each of us pulled the tissue off an ornament, we’d hold it up for Michael to see and ask him if that one should hang on the tree.  Once he gave us his yes or no, then he’d pick the right spot on the tree.  After spending two months watching Michael lying there in his ICU bed, I cannot tell you the joy I felt seeing him sitting there happy and smiling, reaching out to touch an ornament or grab John’s shirt and make him laugh.  Michael’s R.N., a wonderful lady named Joan, had a good time helping with the ornaments.  They were all new to her, so I shared some of the stories attached to them.

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Here it is, courtesy of Michael and John!

As for me, I put on a Christmas jazz CD and drank eggnog.  All of a sudden, there it was.  Our family gathered around the Christmas tree, breathing in the fresh pine scent, joking about hanging the good ornaments up where our three cats can’t get at them.  My mother is visiting my brother right now, but she’ll be back for Christmas Eve.  My sister is down in Southern California, but she’ll be back for New Year’s.  It’s good to have time with just us and the boys.

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In my family we party a lot during the holidays.  My birthday is December 29.  My sister’s is on January 1st, and my mother’s on January 3rd.  I keep careful track of who gave who this or that Christmas present, along with who gave who that birthday gift.  Lists!  More lists!  One of the traditions I consider most important is writing thank-you notes.  Michael likes to create his own stationery, and John will add little drawings to his cards.

We have so much to be grateful for, and so many people to whom we owe our thanks.

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