Category Archives: mother

5 Things You May Not Know About Having Multiple Children with Special Needs


I have just discovered Jenn and her amazing family. As a mother with more than one child who has special needs, I know how complicated it can be to just get through the day. To me, Jenn is a superhero. Read on and you’ll see why.

Special Needs Essentials Blog

We’re happy to introduce a new gust blogger to the Special Needs Essentials community,  Jenn from Positive Parenting Specialized. We are glad to have her unique perspective on our blog!

Hi there, I’m Jenn, a single mom to a seventeen year old with Global Depression, a fifteen year old with Asperger’s Syndrome (and a hand full of co-morbid diagnosis), a 10 year old with autism, Type 1 Diabetes, and Generalized Anxiety Disorder, and a 7 year old fireball with Disruptive Behavior Disorder, Sensory Processing Disorder, Learning Challenges, and Anxiety Disorder. I am in my forties and have started blogging to try to support the kids and myself. I love being a work from home mom, praying often that it stays this way.

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Life with four children who all have unique challenges might be surprising. Maybe some of these points are “No Brainers.” See for yourself!

Here are Five Things…

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Filed under autism, Depression, doctors, Family, Food, frustration, Goals, mother, neurodiversity, parenting, special education, Special needs, worry

The Comfort Zone: Are You In or Out?


by Lillian Csernica on September 5, 2017

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I’ve been reading a lot lately about how writers need to get out of their comfort zones. Apparently better writing is achieved once we leave our comfort zones and venture out into the wild terrain of ideas that scare the daylights out of us.

I’m not talking about horror per se. There are subjects that we all find distressing. The kind of material that people these days label with trigger warnings. Facts and stories and ideas which will hit us where we live, push on old bruises, maybe bring fresh pain to old scars. Such subjects are intensely painful and could be trauma triggers.

A trauma trigger is an experience that causes someone to recall a previous traumatic memory, although the trigger itself need not be frightening or traumatic and can be indirectly or superficially reminiscent of an earlier traumatic incident.

(Relevant tangent: If you’re interested in the debate about trigger warnings, I recommend reading The Trigger Warning Myth.)

While I can appreciate the need to test one’s boundaries and stretch one’s literary muscles, I do have two problems with all of these articles urging writers to get out of their comfort zones.

  1. The people giving this advice have no idea what’s outside my comfort zone. I might have some very good reasons for staying in it.
  2. There’s a crucial piece of information missing. Maybe it’s just the debate team in me, but I don’t see anybody defining the term “comfort zone.” (That’s why I keep linking to the definition every single time I use that phrase.) To me the proper starting point is figuring out precisely where our comfort zones begin and end. Once that’s mapped out, we know where to find terra incognita. We can point to the spot that says “Here there be dragons!”

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Time for painful honesty. For years now people have told me I should write about my experiences with my older son Michael. Bed rest in the hospital. The terror of the day he had to be delivered via emergency C-section. Every day and night of the three and a half months he remained in the hospital, coming close to dying time and time again.

Why don’t I write about that? Simple. I’ve been too busy living it. For most of Michael’s twenty-one years on this planet, my husband and I have considered it a good week if no medical emergency forced us to call 911.

Same with John. Sure, I could write about the day he got out the front door while I was changing Michael’s diaper. I had to dash out after him before he made it to the busy street. I tore my right calf muscle doing so. Then I still had to get up and run after him. I wound up in the ER that night, and came home on crutches. That added a whole new layer of difficulty to being primary caregiver for two special needs children.

What’s outside my comfort zone?

Miscarriage. Babies dying. Whether or not to turn off the life support.

Wondering if I’ll ever know the joys of being a grandmother.

Who will look after my boys once I’m dead.

And a few other matters that I’m not ready to talk about to anybody, even myself.

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Yes, I agree that “growing our comfort zones” is a worthwhile goal. I also think people who dish out such advice should be mindful of the dangers of doing so. These are hard times. Telling people to go rummaging around in the darker corners of their psyches for really juicy writing material is not a smart or a responsible thing to do.

For me, getting my own car again was a big step outside my comfort zone. I didn’t drive for years because of a Gordian knot of anxieties surrounding the subject of driving. Now I have a car. Now I drive all the time. Oh look, here I am writing about it!

For once I don’t mean to sound sarcastic. You decide when and if you want to step outside of your comfort zone. You decide just how far, and how often. It’s good to tell the stories that only you can tell. It’s more important to respect your own pain and your own right to privacy. You’ll know when the time is right.

For some excellent thoughts on why there’s nothing wrong with staying in your comfort zone, go see what Darius Foroux has to say.

 

 

 

 

 

 

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Filed under autism, Depression, doctors, dreams, Family, family tradition, Fiction, frustration, Goals, Horror, hospital, Lillian Csernica, mother, neurodiversity, parenting, PICU, Self-image, Special needs, surgery, therapy, Writing

Universal Studios: Screaming and Laughing


by Lillian Csernica on July 2, 2017

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Next up: Shrek 4-D. This adventure was so amazing and funny we saw it both days.

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You start out in Lord Farquad’s Dungeon, where the Three Little Pigs and Pinocchio are being held prisoner. The Magic Mirror and the Ghost of Lord Farquad get the story started as a prelude to what happens during the 4D movie in Ogre-Vision!

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No spoilers here, but I will say this is more than just a visual experience. Four out of the five senses get some stimulation. One of them hit me right where I live, bringing a whole new dimension to this thrill ride!

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Minion Mayhem — Another wild ride! When the Minions all get thrown into prison, Gru starts a recruiting campaign. This is the basis of the ride’s storyline. Gru’s henchman Dr. Nefario has created another evil death ray gizmo that will turns even humans into Minions. (I got to be a purple Minion!) John and I can’t wait to see Despicable Me 3.  What we saw during the ride convinced us we had to see the whole movie. John bought a Minion key ring with his name on it. I bought a charm that shows Kevin and Bob back to back, both of them holding serious ray guns! The perfect keepsake to remind me of the time John and I joined the ranks of the Minions!

The Simpsons Experience — Ever wanted to be inside an episode of The Simpsons? This will do it for you. It’s an insane 3D ride through Itchy & Scratchy Land, facing the homicidal robot cats and mice. There’s an ominous undercurrent to the ride’s lead-in, which explodes into some genuine terror (at least for me) when you experience the very realistic sense of being trapped on a shattered roller coaster.

Yes, that’s right. If you weren’t already in enough of a panic, the ride starts going backwards!

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Back when I was ten years old, just the prospect of going behind the scenes at a real working movie studio was a huge thrill. In today’s modern digital world, visitors expect a whole lot more given the endless competition for their attention spans. Now the Studio Tour includes a 3D adventure between King Kong and some vicious dinosaurs. The grand finale is the hyper-realistic, HD adventure Fast and Furious: Supercharged.

I confess a certain nostalgia for the Jaws portion of the tour. There I was, sitting in the tour shuttle with John just as my mother had sat with me. John has a pretty good grip on what’s real and what isn’t, but that didn’t stop him from yelping when the shark reared up out of the water. Another fine family tradition, watching the next generation get freaked out by Bruce the animatronic shark.

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Filed under artists, autism, bad movies, classics, creativity, dreams, fairy tales, Family, family tradition, fantasy, history, Horror, Humor, legend, Lillian Csernica, memoirs, mother, nature, parenting, perspective, research, science fiction, travel, veterinarian, Writing

Universal Fun!


by Lillian Csernica on June 24, 2017

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Tomorrow John and I will fly down to Los Angeles and spend a few days enjoying the wonders of Universal Studios Hollywood.

John has been talking about seeing Universal Studios ever since he first heard about it many years ago. Chris and I decided that a trip to this previously unexplored land of movie magic makes the perfect graduation gift for our boy.

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John and I have studied the map. We’ve discussed what we each want to see the most. Today we’ve been packing our bags. Tomorrow we take our first plane trip together. I’m pretty sure what John is looking forward to the most is The Wizarding World of Harry Potter.

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Me, I’m looking forward to the air conditioning on the plane, at the hotel, and on many of the rides. I’m not a big fan of heat, preferring autumn and winter to summer. I suppose this is an indicator of my advancing years. Insane roller coasters are great, but they lost their appeal for me after I reached my late twenties.

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Even so, I can’t wait to watch the Special Effects Show with John, to get silly in the Despicable Me Minion Mayhem area, and probably scream at least once on the Jurassic Park ride. Best of all, I finally get to drink butter beer and hang out at Ollivander’s where Harry Potter’s wand chose him!

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My grandfather worked in the movies. My mother has appeared as an extra in several. I did some writing for the movies, once upon a time. And now my son loves movies just as much as the previous generations in our family have.

Watch for my trip report once we’re home again!

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The Naked Truth


by Lillian Csernica on May 17, 2017

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I recently got a phone call that is one of those phone calls you really don’t want to get.

I’d gone in for a mammogram. Not fun, but an important part of keeping ahead of anything that might show up. Went there, did that, got it over with for another year.

Or so I thought.

Got a phone call from the imaging center telling me the doctor there wanted me to come back in for some additional views on my right side. “What does that mean?” I asked. “Is something wrong?”

Never ask the people at the front desk these questions. They don’t know, and they can’t tell you even if they do know.

So I made a follow-up appointment for today. Was I nervous? Hell yes I was nervous.

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The imaging center front office is very cheerful with all the pink items associated with breast cancer awareness. There were a few nervous-looking women in the waiting room along with some very bored men. I’ve been in a lot of medical waiting rooms over the years, some for myself, some for the boys. Rarely have I experienced an atmosphere of everybody trying so hard to ignore the reasons why we were all there.

My turn came, I suited up in the bright pink gown, and the mammogram tech got those images. She took them to the doctor there, who would decide if further imaging would be required.

During that ten minutes or so, I kept myself occupied by telling myself to calm down, to stop imagining horrible outcomes and scaring myself, to have faith.

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Another tech appeared, this one in charge of ultrasound. Yes, the doctor wanted further images. So I followed that tech into the large closet where they do the ultrasound exams. For once the ultrasound goo was not cold. Thank God for small favors.

The ultrasound exam went on and on  and on. Time has no meaning when you’re lying there in whatever position you’re put in, feeling your muscles start to cramp while being too scared to move or say anything for fear of messing up the exam and having to start all over again.

At last those images were complete. That tech went off to show them to the doctor. I did my best to remove all the goo and stay calm while this new level of anxiety jacked up my adrenaline level.

The doctor’s verdict? The mass they’d wanted a closer look at turned out to be nothing more than a water cyst about the size of a small ball bearing.

Thank you, God. It turned out to be nothing, but it might have been something. Now I know and the doctors know and it’s all good for another year.

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X is for Crosses (Art Nouveau – #AtoZChallenge)


by Lillian Csernica on April 28, 2017

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X is one of the more difficult letters in the A to Z Challenge. Fortunately, the popularity of art nouveau extended into religious imagery as well. This resulted in a dazzling variety of pendants and rosaries.

Vibrant Art Nouveau Champlevé Enamel Antique Cross Pendant

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Vintage Spanish Art Nouveau Cross

This large Art Nouveau cross pendant is made in 22 K gold composed of one square-cut amethyst surrounded by four baguette-cut raspberry-pink amethysts. Each amethyst is encrusted in the center with a platinum-on-gold collet-set antique single-cut diamond. The colorful amethysts are set in a floral motive, enhanced with 16 antique single-cut diamonds set in a collet setting made in platinum on gold. Probably Belgium, circa 1900.

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Large Antique French Rosary Crucifix/Cross Art Nouveau / Mother of Pearl Beads / Art Nouveau Connector/ Hand Carved MOP Crucifix.

Early 1900s 18k yellow gold crucifix featuring blue and orange glass and plique-a-jour enamel. Signed by P.L. Dasset.

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Art Nouveau Montana Sapphire And Carved Gold Cross.

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Antique Art Nouveau 18k Diamonds Cross Pendant

 

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Filed under #atozchallenge, Art Nouveau, artists, Blog challenges, charity, creativity, Eastern Orthodox Christianity, history, mother

H is for Hair (Art Nouveau – #AtoZChallenge)


by Lillian Csernica on April 10, 2017

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For those who don’t know me, I have long hair all the way down to my hips. My romance heroines have long hair. That’s appropriate to the time periods I prefer, plus there is a lot more romantic potential in grooming long hair, pinning it up, letting it tumble down, etc.

The jewelers who favored Art Nouveau designs enjoyed working with women’s hair, whether up, down, or something entirely different!

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Art Nouveau pendant “Poésie” by Paul and Henri Vever, Paris, circa 1900

Unger Bros., sterling silver brooch, circa 1900.

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Gold, enamel, diamond, emerald, pearl.

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Gilded silver locket with chalcedony. German, 1900.

Sterling silver brooch. Unger Bros.

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Gold, enamel, diamond, and pearl. French, 1900.

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Supreme Court Supports Special Needs Education


by Lillian Csernica on March 22, 2017

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Today the Supreme Court ruled to improve educational benefits for special needs students!

This is wonderful news. With Trump in office, I’ve been very worried about what programs will remain in place to support my sons as they “age out” of the county educational system. This sets a precedent that will prompt positive decision-making!

Get the details here!

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Filed under autism, creativity, doctors, Family, Goals, mother, neurodiversity, parenting, special education, Special needs, therapy, Writing

How to Plan For Success


by Lillian Csernica on January 2, 2017

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I’ve been doing a lot of research lately. The marketplace for writers is more competitive than ever. There are plenty of articles and blog posts and other advice venues full of tips on how to get where we want to go with our writing. It gets confusing, and not a little overwhelming.

As I’ve said in other posts, I’m not a fan of making New Year’s Resolutions. Too much pressure, especially at a time of year when we’re all recovery from the mad dash of the holidays. I do believe in setting goals and making plans. With that in mind, allow me to share with you my plan for 2017.

To be successful as a writer, I must make a daily effort in each of these three areas:

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WRITING

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EDITING

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I’ve been reading up on the work habits of some of my favorite Big Names, such as William Nolan, who says he writes for three hours a day. Some years ago when I had the pleasure of meeting Roger Zelazny, he told me he sat down at the keyboard four times a day and wrote at least three sentences each time. During at least one of those times his writing would take off and he’d get a satisfactory amount of work done for that day. Esther Friesner and Janet Evanovich have also provided some excellent guidance about figuring out one’s optimal work habits.

On January 9th, school is back in session here in our neck of the woods. On that day I will launch my new work schedule. My office hours will be from 10 a.m. until 2 p.m., with the exception of days when I’ve scheduled appointments.

Now here’s the breakdown of my work time, a division of labor which I hope will lead to making progress on several fronts:

10 a.m. until noon — Writing fresh material.

Noon to 1 p.m. — Editing short fiction from what I call my Mending Pile. I may well write more on these projects as well.

1 p.m. to 2 p.m. Pursuing the noble art of Shameless Self-Promotion. Blogging. Tweeting. Researching markets. Trading reviews. I must promote my own work, but I also have a duty to do my share of promoting the anthologies that include my stories.

My boys come home from school around 2:30 p.m. I want to be available for help with their homework, listening to how their days have gone, and in general being a good Mom. It’s very easy for me to stay shut away in my Ivory Tower while I’m working. That’s not OK. I can do that later after the boys are asleep.

I also want to be sure I have time during daylight to get out for a walk. I need more exercise, more time in the sun, and more contact with my neighbors. I may be an extrovert by nature, but the writing life tends to encourage being a recluse if you have a passion for research or you get your hands on a good book and lose all track of time.

Wish me luck! I will keep you posted on how well my plan is working.

 

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The 12 Rules of Christmas


by Lillian Csernica on December 15, 2016

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1) Thou shalt slow down. We’re all in a hurry. It’s that time of year. If we can “proceed in a calm, orderly fashion” the way we’re directed to do during emergencies, then maybe we can avoid the kind of emergency that will ruin everybody’s day. Yes, I mean traffic. I also mean elevators, escalators, check out lines, and any other point where the crowd tends to hit a bottle neck.

2)Thou shalt hurry up. This means have your ticket ready when you exit the parking garage. This means get off your cell phone and stop blocking the aisle. This means know what you want to order by the time you get to the head of the fast food line.

3)Thou shalt have mercy on servers, salespeople, and other customer service representatives unless and until they demonstrate deliberate rudeness. Once that happens, demand to see the supervisor or manager. Take the time to make sure those rude people get busted for their bad behavior. You deserve polite service.

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4)Thou shalt give no gifts that require labor or maintenance unless by prior explicit agreement. This means any living creature in the pet category, any plant growing in a container, anything from any DIY category on Pinterest, and especially any of those “In A Jar” projects.

5) Thou shalt not covet thy neighbor’s parking space. This goes double for the handicapped slots. Just because you can’t see why a person has a handicapped placard or special license plate, that doesn’t mean he or she doesn’t have a disability that qualifies.

6) Thou shalt contain thy children. This includes both physical movement and volume control.

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7)Thou shalt prepare, taste, and evaluate any new recipes before inflicting them on innocent and unsuspecting family and/or guests. Have you ever wondered why the women’s magazines bring out all those bizarre recipes for the holiday season? If those food items are so delightful, why aren’t people making them anymore?

8) Thou shalt keep thy receipts. Big stores like Toys R Us and Macy’s are pretty good about “gift receipts,” making returns possible without the person knowing exactly how much you spent on the gift.

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9) Thou shalt not put up so many Christmas lights, inflatable snowmen, animatronic reindeer, etc. etc. that you create a traffic hazard by either distracting drivers, blinding them, or both.

10)Thou shalt cover thy nose or mouth in the event of a sneeze or cough. Come on, people. Do the elbow thing. Do NOT use your hands, because you will then spread whatever germs didn’t already escape into the air.

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11)Thou shalt send actual written thank you notes. I know, this must sound unbearably old-fashioned in the Digital Age, but it’s the right thing to do. My sons send written thank you notes, and everybody knows Michael and John both need some help to do that. People are surprised and very pleased. Word gets all the way back to my mother, who sat me down and made me write thank you notes as soon as I had learned how to write.

12)Thou shalt give thyself permission to stop trying to make everybody happy all at once, especially when that means losing sight of making thyself happy too. Figure out what really makes you happy, be it baking cookies or driving around looking at Christmas lights or going to church or playing silly board games with your friends. Do those things. Give yourself the gift of “Peace on earth, goodwill toward Man.”

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