Category Archives: autism

Universal Studios: Screaming and Laughing


by Lillian Csernica on July 2, 2017

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Next up: Shrek 4-D. This adventure was so amazing and funny we saw it both days.

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You start out in Lord Farquad’s Dungeon, where the Three Little Pigs and Pinocchio are being held prisoner. The Magic Mirror and the Ghost of Lord Farquad get the story started as a prelude to what happens during the 4D movie in Ogre-Vision!

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No spoilers here, but I will say this is more than just a visual experience. Four out of the five senses get some stimulation. One of them hit me right where I live, bringing a whole new dimension to this thrill ride!

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Minion Mayhem — Another wild ride! When the Minions all get thrown into prison, Gru starts a recruiting campaign. This is the basis of the ride’s storyline. Gru’s henchman Dr. Nefario has created another evil death ray gizmo that will turns even humans into Minions. (I got to be a purple Minion!) John and I can’t wait to see Despicable Me 3.  What we saw during the ride convinced us we had to see the whole movie. John bought a Minion key ring with his name on it. I bought a charm that shows Kevin and Bob back to back, both of them holding serious ray guns! The perfect keepsake to remind me of the time John and I joined the ranks of the Minions!

The Simpsons Experience — Ever wanted to be inside an episode of The Simpsons? This will do it for you. It’s an insane 3D ride through Itchy & Scratchy Land, facing the homicidal robot cats and mice. There’s an ominous undercurrent to the ride’s lead-in, which explodes into some genuine terror (at least for me) when you experience the very realistic sense of being trapped on a shattered roller coaster.

Yes, that’s right. If you weren’t already in enough of a panic, the ride starts going backwards!

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Back when I was ten years old, just the prospect of going behind the scenes at a real working movie studio was a huge thrill. In today’s modern digital world, visitors expect a whole lot more given the endless competition for their attention spans. Now the Studio Tour includes a 3D adventure between King Kong and some vicious dinosaurs. The grand finale is the hyper-realistic, HD adventure Fast and Furious: Supercharged.

I confess a certain nostalgia for the Jaws portion of the tour. There I was, sitting in the tour shuttle with John just as my mother had sat with me. John has a pretty good grip on what’s real and what isn’t, but that didn’t stop him from yelping when the shark reared up out of the water. Another fine family tradition, watching the next generation get freaked out by Bruce the animatronic shark.

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Universal Fun!


by Lillian Csernica on June 24, 2017

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Tomorrow John and I will fly down to Los Angeles and spend a few days enjoying the wonders of Universal Studios Hollywood.

John has been talking about seeing Universal Studios ever since he first heard about it many years ago. Chris and I decided that a trip to this previously unexplored land of movie magic makes the perfect graduation gift for our boy.

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John and I have studied the map. We’ve discussed what we each want to see the most. Today we’ve been packing our bags. Tomorrow we take our first plane trip together. I’m pretty sure what John is looking forward to the most is The Wizarding World of Harry Potter.

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Me, I’m looking forward to the air conditioning on the plane, at the hotel, and on many of the rides. I’m not a big fan of heat, preferring autumn and winter to summer. I suppose this is an indicator of my advancing years. Insane roller coasters are great, but they lost their appeal for me after I reached my late twenties.

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Even so, I can’t wait to watch the Special Effects Show with John, to get silly in the Despicable Me Minion Mayhem area, and probably scream at least once on the Jurassic Park ride. Best of all, I finally get to drink butter beer and hang out at Ollivander’s where Harry Potter’s wand chose him!

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My grandfather worked in the movies. My mother has appeared as an extra in several. I did some writing for the movies, once upon a time. And now my son loves movies just as much as the previous generations in our family have.

Watch for my trip report once we’re home again!

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Supreme Court Supports Special Needs Education


by Lillian Csernica on March 22, 2017

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Today the Supreme Court ruled to improve educational benefits for special needs students!

This is wonderful news. With Trump in office, I’ve been very worried about what programs will remain in place to support my sons as they “age out” of the county educational system. This sets a precedent that will prompt positive decision-making!

Get the details here!

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Can It Get Any Sillier Than This?


By Lillian Csernica on August 26, 2016

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Have you ever had one of those days where the raw, undiluted silliness of people was simply beyond belief?

For me, today was that day.

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Finding two hard-boiled eggs.

I had an early doctor appointment this morning, so early I was out of the house and in my car by 7:15 a.m. I stopped at the grocery store for an iced coffee. In the deli I can usually find ready-to-eat hard-boiled eggs. Not today.

At that hour I was one of maybe three customers in the entire store.  I asked one of the folks behind the deli counter if they had any more hard-boiled eggs. She came out and looked around in the deli cases, finding none.

Then another clerk hailed me. She wore the tool belt that had sheaths for her box cutters.  That meant she worked on the loading dock in the back opening deliveries.  (I have no idea what she was doing hanging out by the deli counter.)  She told me there was one other place to look for the eggs. This was way across the store. She led me over there, found nothing, and expressed her deep regret.

All I can figure is I was a customer and these people were going to make sure their manager saw them providing good customer service. Two hard-boiled eggs were not that big a deal to me. Seeing these clerks turn my breakfast into The Quest for The Eggs was really funny.

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Sittin’ at the car wash

In my front yard we have an oak tree so big and so old several of its limbs are supported by a network of thin cables. The oak tree drips what I assume is sap, leaving sticky trails down the windshields and sides of our vehicles. Living out in nature means a fine dusting of pollen all over everything. Then there are the power lines, which provide wonderful perches for the blue jays, sparrows, robins, and crows. You see where I’m going with this, don’t you? The Bird Brigade sits on the power lines and poops all over our vehicles.

I picked up John after school today and ran some errands, which included going to the car wash. You pay your money, get a receipt with a code on it, then drive around to the entrance of the car wash. The average wash takes about ten minutes start to finish. There were four cars ahead of us. Matters were moving along at the usual rate when the next car into the wash unit suddenly backed up. I watched this person pull forward and back up three separate times. What madness was this?

Then I understood. This person had never been through this car wash before. What he or she thought was an alarm was merely the signal to stop the car so the wash could begin.

At this point there were two other cars ahead of me and three more behind me. Why were we all just sitting there watching this poor fool pulling forward and back, risking damage to the car and the wash unit, to say nothing of the next car in line?

I sent John to tell the attendant at the cash register what was going on.

That got sorted out with no injuries to people or machinery, thank God. John and I took our turn. My car now looks all shiny and pretty.  I bought John an ice cream sundae as a reward for his patience.  The poor guy had been stuck in the car over an hour thanks to a bunch of adults who couldn’t get out of their own way!

 

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A Personal Glimpse Inside Autism and ADHD


This weekend Withteeth and I went to a writing conference. I haven’t talked about my writing in a while, but it is still something I’m pursuing. However, conferences are incredibly difficult for me. As such, I wanted to write a bit about the struggles with anxiety and how to deal with it both for people […]

via How to Deal With Anxiety — hessianwithteeth

I’d like to express my gratitude to hessianwithteeth for giving us all these insights into such complex and demanding experiences.

It’s so wonderful that people with visible disabilities are gaining recognition and inclusiveness. Life can be even more difficult for people with conditions that can’t be seen from the outside. My own Major Depressive Disorder has been gaining the upper hand these past two weeks, making this issue all the more immediate and important to me.

Remember. You are not alone!

Lillian

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How We Survived a Three Convention Weekend


by Lillian Csernica on June 4, 2016

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Hi, gang. I made it through all four days of Clockwork Alchemy, BayCon, and Fanime.I would have written this post sooner, but the sudden discovery of John being WAY behind on preparing his Final presentation/exam in one of his classes caused me to devote what energies I had to making sure he met today’s deadline. I love that boy dearly, but some days he makes me crazy.

The weekend was packed with memorable moments.  This was John’s first time really participating in conventions.  (He did make a brief appearance at the Meet the Guest Reception of one BayCon about ten or twelve years ago. We had to keep him away from the buffet and out from under everybody else’s tables.) It was a spectacular weekend!  John even won a Hall Costume Award for his steampunk attire.

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Technolo-John meets Mega Man!

John had quite a few adventures, including playing the communications officer aboard the Starship Artemis. He made a light saber in one of the DIY workshops, and he discovered the joys of hanging out in the Hospitality Suite having munchies and watching “Wheel of Fortune” on a big plasma screen.  That might sound silly, but I was pleased to see John guessing the solutions with everybody else.

At Fanime, all the people in costume blew John’s mind. He’d been hoping to meet some of his favorite superheroes. Sure enough, one man was dressed as Nightwing, and one young lady wore a Raven costume. Raven told John how much she liked his steampunk outfit. That had him walking on air!

Business was good. I sold all but one of the anthology copies I brought with me.  Gave away all the beaded space-theme bookmarks and the Japanese art print bookmarks, all of which had this here blog’s URL on the back.  Shameless Self-Promotion! John got to see people asking me for my autograph as I signed their copies.  This is my idea of Take Your Kid To Work Day. Now John knows that I really am (kinda) famous.

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At Clockwork Alchemy on Sunday morning I had a good time teaching the Victorian Yarn Doll DIY.  Yarn colors included forest green, wine red, and navy blue, as well as what I like to call the “steampunk rainbow.” This is a yarn made up of several jewel tone colors suitable for the steampunk era. Traditional Victorian yarn dolls are either boys or girls.  Out of respect for the gender fluid community, I wanted to provide materials that were both inclusive and diverse. If you’re interested in making yarn dolls, Pinterest is a gold mine of methods, styles, and materials.

Mixy Award

This is the Mixy Award, created by Steve Mix in honor of those people who he feels deserve recognition for their ongoing contributions to fandom and the convention community.  At this year’s BayCon, Steve granted me the honor of presenting the Mixy to none other than my best friend and co-conspirator, Pat MacEwen.  Convincing her to bring the spiffy clothes and dress up on Saturday night was a bit of a challenge, because of course I couldn’t tell her why.

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Steve Mix was also responsible for the D20 challenge.  Several of us who are gamers past or present brought our best D20s to the con.  Whenever some of us would cross paths, we’d roll against each other. Best of five was the general rule.  Whoever won got to keep all the dice involved in that particular round.  I brought five D20s with me, and I left with five D20s, so I broke even.

In the bar of the San Mateo Marriott, the tables are glass.  That meant that in the evening when we had anywhere from three to seven people rolling at once, we made a glorious racket!  (I have to give the staff of the hotel credit.  They embraced the weirdness that is fandom like good sports.  The valets were having a great time collecting badge ribbons.) Steve has the best D20.  It’s made of some kind of metal, and it rolls high and hard.  I told him he should name it the “Deathstar D20”!

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The Snow Jedi

I’m going to break one of my own rules here and post a photo of myself in my jammies. That is indeed the very light saber John made.  This goes to show how much fun I was having. I actually asked Pat to take a photo of me looking like this. This had to be my best Clockwork/Fanime/BayCon ever!

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So, How Was Your Day?


by Lillian Csernica on May 16, 2016

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My day began at 4:15 a.m. when Michael had a serious coughing fit.  Fortunately, I’d fallen asleep on the couch again, so I could dash through the kitchen to his room.  I spent the rest of the night on the couch in his room, getting up every time he had another coughing fit or I didn’t like the way his breathing sounded.

He had no fever and his blood oxygen level was OK, so I sent him to school

Took a nap.  Did my laundry.  Tried to get more writing done.  Failed miserably.

It's not the destination, but the journey that counts. Unless you're stuck in traffic. Then it's the destination.

Picked John up from school.  The usual traffic chaos ensued.  I’m not sure which I want more, an air horn or a laser cannon.

Drove to the tire repair center so I could get the new right rear tire put on in place of the spare.  Yesterday I got my first flat tire.  That was not a pleasant experience.  Had to call Chris for help.  It being Sunday, no garages were open.

The tire hadn’t come it yet.  It would arrive within the hour.

So John and I sat in the Burger King across the parking lot.  He did his homework and I cut more text out of the synopsis for Sword Master, Flower Maiden.

The Tire People called me, put my tire on, and I took John home.

Michael was not doing well.  The coughing situation continued at school.  My sister was on duty with Michael this afternoon.

I happened to go next door to talk to my neighbors, the ones on the left side, not the ones on the right who have the child I refer to as the Cute Little Hellspawn.  The man makes guitars and has forgotten more than I’ll ever learn about all the different parts and the amplifiers and speakers and all the other equipment that goes with playing guitar.  I spent most of an hour there listening to him talk about his guitars and play a few for me.

So of course, when I went back home, all hell was breaking loose because nobody knew I was next door.  My fault.  I should have said something before I left.

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We were out of Benadryl.  I had to drive to the store and buy some.  So I did.

I get home, and my sister had called one of our R.N.s, who said Michael would do better to take Tussin than Benadryl.  Did we have Tussin?  Sure, two doses worth.

So I drove back to the store.  Mind you, it was after seven p.m. and I hadn’t even managed to eat dinner yet.  I was tired, grumpy, and my vision seemed a bit blurred.

That’s when I realized I’d left the house wearing my computer glasses.

At the drugstore, there was a Perfect Storm of a new, inexperienced checker at the register, the customer ahead of me had a ton of items, and the debit card reader was acting up again.

I am home now.  I have a pile of manuscripts to read.  I have a synopsis to edit.  I have laundry to fold and put away.  And then there is the list of things I still have to do to get ready for BayCon and Clockwork Alchemy.

So tell me, how was your day?

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Why Permission Slips are Still Essential


by Lillian Csernica on May 12, 2016

Once again, my sons’ high school administration has made me furious.

Earlier this week John came home with a full color brochure full of quotations from famous people and some really disturbing photos.  The subject?  The cruel and brutal treatment of farm animals and how they are killed and processed for our food.

Horrifying?  Oh yes.  Was that all?  Oh no.

There was a video.  Plenty of gross, heart-wrenching detail.

Whoever was behind this went for the hat trick by providing a speaker who hammered the message home even further.

John was really upset.  I sent an email to his teacher/caseworker expressing my outrage over having not been allowed any kind of parental review of such disturbing material. I asked very clearly to know who had approved this material for the class.

As usual, she didn’t know a thing about it and said she’d look into it.  The next day I got an email from her saying she’d spoken to the Health class teacher who told her some other students had also been upset by the subject matter.  Really?  Gosh, who could have seen that coming?

Nobody answered my question about  who approved the material in the first place.

John’s teacher/caseworker assured me this would be taken into consideration for next year.  What about this year?  What about these students?  What about the damage that has already been done?

I have followed procedure by contacting John’s teacher/caseworker.  I’m in the process of making an appointment to talk to the principal.  I don’t expect much.  The school year is almost over and the administration will probably just make the usual soothing noises and promises of doing better next year.

Not good enough.

I will have a name, and if I don’t get one, I’m going to keep going up the chain of command until somebody takes responsibility for this.

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My 3rd Blog-iversary!


by Lillian Csernica on March 11, 2016

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Three years ago today I began my adventure into the world of blogging.  I have met many delightful people in the course of reading comments here and leaving my own replies on other folks’ blogs.  The A to Z Blog Challenge is coming up next month.  I look forward to participating once again.  This is a wonderful way to meet new people and learn interesting tidbits about a wide variety of topics.

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As the sign says, on Monday, March 21, all of us who are participating will be declaring the zany topics we’ve chosen.  The first year I participated, I chose writing terms.  For the second year, unusual items made from chocolate.  Last year I came up with 26 really bad sword & sorcery movies.  This year?  I shall be exploring one of my favorite subjects.  Be here on the 21st for the big unveiling!

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Let me offer a deep and sincere thank you to every single one of you who has been kind enough to stop by, take a look, and even leave some comments.  It means so much to me.  That sounds corny, but it’s true.  We may never meet face to face in this life, but even so I am so glad to have the opportunity to share ideas with you and hear what you have to say.

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Life with my two sons can often be difficult to the point of heartbreaking.  I thank you also for all your prayers, kind thoughts, and good wishes as my boys and I have made it through one of our more difficult years.  God bless you for giving me some virtual shoulders to lean on when I’ve been in serious need of support.

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Family: The Other F-word


by Lillian Csernica on March 6, 2016

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Life is hard when you have one special needs child.  Life gets exponentially harder when you have another child, especially when that child turns out to have special needs also.

The thing that makes life unbearable is when you run into the family member who knows more than you do about everything.  This person isn’t a doctor, a nurse, or a therapist of any sort.  This person might have teaching experience, might have volunteer experience, might even have some experience of special needs with his or her own child.

“A little learning is a dangerous thing.” — Alexander Pope, An Essay on Criticism

It’s bad enough that as a mother I’m under my own constant scrutiny, watching to see if I’m doing what the doctors and therapists tell me to do so my sons will grow up realizing as much of their potential as possible.  It’s bad enough when people who mean well but who have no real idea about daily life in a special needs household come to me with questions or suggestions that I know won’t work, I’ve tried and modified, or found effective five years ago.  Right here, right now, I know what’s best for my sons.  Why?  I’ve devoted my adult life to finding out.

What really hurts, what goes so deep that the emotional bruising lingers for days, is when a family member decides to tell me I don’t know what I’m doing, I’m doing it wrong, or I’m just doing nothing.  Yes, that’s right, just the other day I got a lecture on what a lazy, careless, thoughtless, inconsiderate mother I am.

Every mother knows how much this kind of attack hurts.  No matter how hard we try, there’s always that little nagging voice inside us that sees what we don’t do.  The greater effort we could have made.  The times when we were selfish enough to give ourselves a break.

One of the people I ought to be able to count on for support has just hit me where I live.  This person does not have a sterling track record in the parenting department, but if I dare point that our then I’m just being cruel and trying to dodge the real issue.

The nice thing about people you hire to work with your children is your option of firing them when the time comes.  You can’t fire family.  Blood is blood, even when there’s a strong temptation to spill some.

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