Miriam Gwynne is a woman I admire very much. I had to reblog her post here. She has captured the essence of every day life for parents of ASD children. Please, help me boost the signal here. So many people need to read this.
Twice now I have heard the paediatrician confirm ‘Your child has autism’.
Have you any idea what that feels like?
Hundreds of times I have found myself telling someone else that one or both my children have autism.
The responses are interesting. They range from shock to sympathy, from confusion to comfort, from understanding to utter ignorance.
A few times people have told me it isn’t that bad, it is ‘only autism’.
Before I go any further I need to tell you I am so grateful for my children. I adore them. My son attends a school for children with severe and complex needs and he mixes every day with children who have life limiting and severe medical and developmental needs. I am involved with a charity that supports children with Neurofibromatosis and know personally of children with brain tumours, undergoing intensive chemotherapy and struggling with pain. Every time I…
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